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Times-Advocate, 1987-02-04, Page 12Times -Advocate, l'ebruary 4, 1987 ATTENTIVE AUDIENCE - - Grade 7 and 8 students gave Gerald Gackstetter their full attention as he told there how diabetes had affected his health and how he was learning to cope with blindness. Special progra %%'hat's it like to live with a disabilr ty". How can we help those who are - physically or mentally handicapped The students in grades seven and -eight al 1 tensalt Public� School are get- ting first-hand answers to those ques- Iic►ns through a unique and unforget- table language unit on the disabled. People in this community who are coping with medical disorders such Kimberly wears one in each ear. During school hours. kindergarten teacher ,loyee Preszcator wears a clip -on mike which amplifies her %like. This is -picked up bya receiver strapped to Kimberly's waist and plugged into her hearing aid. • Kimberly attends an. auditory - verbal therapy program once a week in Toronto with her mother. This pro - then described 'how he is adjusting %vitt) the help of the CNIB. He demonstrated his collapsible cane. and told about the talking clock and --talking- books. all supplied by the CNIB. Gackstetter will continue his lessons in finding his way around out- side when the return of good weather makes walking less hazardous. Ile joked about often heading up the wrong driveway last year, and men- tioned windchimes as an excellent means of audible house identification for someone who is blind. Gackstetter shocked his young listeners with the revelation he is no longer able to urinate. All liquid he drinks is retained :until the next dialysis session. "I can lose weight really fast", he laughed. Gackstetter suggested two ways people like himself can be helped: ot- ter a helping hand it you see a blind person trying to cross a street, and sign an organ donation card or the ap- propriate section of -your driver's licence. Pam Scotchmer, a victim of multi - i TEACHING AID — Principal Dave Kemp demonstrates how a Language -Master works after Bonnie Rowcliffe (centre) told grade 7 and 8 students about the speech difficulties being experienced by her. son. alters attitudes The petite young woman has trou- ble -reaching- anything high, avoids escalators and revolving doors, and finds she can't get round as easily in winter. On the other hand, she has seen great improvement in the last few years in facilities like ramps and railings on public buildings, and designated parking at sites such as shopping centres, airports, and public halls, which make fife easier for the physically disabled. More seating in shopping malls would be helpful, she said noting the shortage of recrea tionaly facilities for the handicapped in small places like Hensall. Cindy receives a permanent - disability pension. In reply to a question about what tvould happen if she drank alcohol. she said she does not drink. as she is afraid of what impairment might do to someone who depends on -Crutches to get aroptnd. Cindy said she wants to be treated the same as anyone else. She ap- preciates a friendly smile. or the courtesy of having a heavy door open- ed for her. Bonnie Itowcliffe was at the school • REVEALING Joyce Preszcator talks to grades 7 and 8 Hensall students taking the language unit on the disabled about her mental- ly- handicapped sister. diabetes and multiple sclerosis, -.and others caring for a deaf child .or a mentally handicaple(t sister are com- ing to the school to "tell it like. it is". The common thread running through all accounts is an up -beat at titude. a complete lack of self-pity. and a philosophy thal lite is good. and its quality enhanced. by living one day a( a time. All guest speakers sl resse(lthe rn► por•tance of others', tolerance and understanding. Principal Dave Kemp first conceiv- e(1 the idea oI a unit on the handicap- ped when a hearing-impaired child registered Icy begin kindergarten Iasi gram teaches the parents how to work with the child. to improve- speech. Mother and daughter practice the ex- . ercises each night . - Sheryl said family members understand most of what Kimberly says, adding •'her speech.has come a long way. and has a long way to go". She attributed 50 percent of the credit for_successfully integrating a hearing- - disabled child into a regular classroom to the support of school staff. noting that "Ilensall has been wonderiul''.. Sheryl placed respon- sibility for the other 511 percent with the child's family. Sheryl gave some pointers on talk- t� UVAM (mo i IS .. . N, Assumption a deaf child can't learn is wrong _September. Another student Inas a - speech problem. r The goal oI 1Is pro-' ject is to make the students more aware oI people in this community with disabilities. :fleeting fellow humans with handicaps face to lace results in an awareness we are all part of the humin family: the only difference is that some of these fleshly bodies we inhabit don't lune- lion as well as others. The embarrass- ment o1 not knowing how to acyl is replaced with the confidence of know ing how and when 10 otter help. Sheryl Forrest was one of the 1u•st of the guest speakers I ler daughter Kimberly is the hearing-impaired child now attending kindergarten. Students were surprised to learn that one baby in LIMO is horn with a serious hearing disability. and one in 111 develops a hearing impairment later. . Sheryl explained that the assum4►- tion.a deal child can't learn is wrong. However. early diagnosis is very im- px►rtanl for language development. Newborn babies can now be filled with hearing aids. ing 10 a hearing-impaired person: Try to be close: about two feel away is ideal. Be sure to face the other per- son so he can read your lips. Speak clearly., Don't shout. Eliminate as much background noise as possible. It- you don't understand what he said. say "pardon" and ask him to repeal it. If you still don't understand. say "what (lo you mean?" or ask him to show you. 'If the (rearing -impaired person doesn't understand what you are say- ing. try to rephrase your remark and say in another way. Although he could not see the response. Gerald Gackstetter from Exeter had an attentive audience as he described the progressive ravages of the diabetes which finally robbed hire of his sight almost tw(iyears ago. Gackstetter told of the two failed kidney transplants and the years of thrice -weekly dialysis since his (Iisc'm.se was diagnosed in 1967 when he was 24. Gackstetter admitted being depressed when he first went blind, PRACTICAL DEMONSTRATION - Area resource teacher Beth McGee gives students a demonstration of the difficulties faced by those with learning disabilities by asking them to use a foreign language. ( HOMEWORK — Sheryl Forrest and daughter hearing-impaired, practice auditory -verbal therapy. Kimberly, who is ple sclerosis. also made a strong im- pression en the students. Pain brought along a -chart of the body's nervous system. She showed how her disease attacks the nerve coatings around thespinal cord. disrupting the signals sent out by the brain. Symp- toms include tremors. unsteady walk- ing because balance is affected, still- ness. unpaired vision. numbness, paralysis, and fatigue. Though not a killer. the disease is progressive. Pam said multiple sclerosis is the most common disease of the nervous system diagnosed among adults bet- ween the ages of 20 and 40 in Canada. When asked how she coped with her disability, Pam said she takes one day at a time. does what she can. and leaves the rest. She singled out the im- portance of helpful friends who make one feel good about one's self as one of her greatest helps. A positive outlook came second. "Smile and keep going. The aller- natiye is death, so why not enjoy life while you are alive", was the way she summed up her coping strategy. Cindy Bisback, now 26. returned to her old school to answer questions about cerebral palsy, which is caus- ed by a lack of oxygen to the brain at birth. She told the students she had the same day as Cindy, to discuss the speech handicap of her son Chris. who is in grade one. Chris. like Cindy. was a premature baby. In his short life he has been through eight operations including three on his eyes and two on his ears. The child has a hearing loss as well as problems with his fine motor skills. but doctors are not sure why Chris is not talking. Ile talked as a baby then stopped. r , Chris spent three years at the Thames Valley treatment centre for children learning sign language. Bonnie explained that Chris hits other kids to get their attention. Ile becomes very frustrated when he knows what he wants to say, and can't say it. Chris is a sports enthusiast : hockey, baseball and wrestling are his favourites. At school. Chris practices speech improvement with a Language - Master. This machine activates a strip of tape to allow a person to hear a word pronounced properly. and then play back his own voice saying the same word. Bonnie said she expects other children to treat Chris the same as Multiple sclerosis strikes many young adults weighed only a little over three pounds when born two months prematurely. Cindy has progressed from braces and a wheelchair toarutches, and en- dured operations which cut and stret- ched her leg muscles, and straighten- ed her feet. She considers herself much luckier than many others she encountered al the treatment centre where she underwent therapy three times a week until she wa/18. (She also at- tend nursery school at the centre. ) Cindy noted The high cost of the braces she'once wore. Often a pair costing hundreds of dollars would be outgrown and useless in a few months. ( they would any child. She said' the ex- perts have held out the hope Chris' speech will continue to improve, and he is now progressing more quickly than_predicted. Some of the information about the • handicapped came from those close- ly associated with them. McCurdy vice-principal Ila Mathers, a special education teacher. introduced the students via video tape to a multihan- dicapped boy who will be entering grade nine at SIIDHS along with the current grades eights from Ifensall. Mrs. Mathers pointed out that han- dicaps can be present from birth. or could be caused later by accidents. She said children like Joey were part of society and hada right to be part of the school systems, but needed ex- tra support. She hoped lo shape at- titudes so the lfensall students will he - comfortable il`Joey is in their home� room next year. The students will get the chance to meet Joey in person, as a visit to Huron Hope School is part of the pro- gram on the disabled. Teacher Joyce Preszcator slipped into the role of guest speaker 10 talk disabilities, one in 20 is afflicted with some form ofsevere learning -han- dicap, and many more experience' minor difficulties, Mrs. McGee told -the class. Disorders may be visual; auditory or kinesthetic: children may have trouble understanding what they -see or hear. with writing things down, or in developing a learning style. Often this "invisible". disability is only revealed through special tests. The students were given a few Learning disorders are 'invisible' disabilities "fYA 2' ':K > S at":.e: o :;;r: ;o," .>8:6xM Yt "s?s: ytrL 'it •'.>3M;`:Yt `..'. about her. mentally handicapped - sister Gloria. A borderline Mongoloid. Gloria lived with her parents until -two and one -halt years ago when she came to live with the Pre:szcalors. She opted to move into the group home on John Sl. in Exeter when a vacanct occurred. Joyce revealed some of the fiscal regulations -Kr -raining to mentally handicapped people receiving mon- thly benefits from the provincial ministry of community and social ser- vices. In order to qualify, a recipient must prove need. 'Those living at home do not receive as large a che- que as group home. residents. - Anyone with over $3.000 in her hank account gets nothing until the balance is . reduced to the stipulated maximum. Gloria lost her benefits on receipt of a small legacy from her parents. Her last cheque, in 1984. was for $491. Since then•she has been paying $b85 a month to live at the John St. residence. She gets back $77 each month. This, plus the approximately $15 she earns monthly at ARC In- dustries, is to pay for all clothing. toiletries, holidays, snacks and entertainment. . . As Gloria's bank account is now back down to the magic number. Joyce has applied to have her sister's benefits reinstated. Joyce did not conceal her concern that people in Gloria's position are restricted to a further $1,900 to be put aside for funeral expenses. She feels that•paltry sum is inadequate: even a modest funeral coals in the range of $2,500 to $3,500. minutes to - hear a new verbal vocabulary before trying to translate sentences spoken in the new language. A similar experiment was done using graphics rather than sounds. They also tried signing their names while swinging the left foot in a wide circle. By observing the _students.with the - assistance of resource teacher Marilyn 'Taylor. Mrs. McGee was able to pinpoint which students learn- ed best by seeing material, which by hearing. and whichones by becoming actively involved. ( Some were shown to definitely belong in one of the three. categories, and others were equally adept in more than one area.) Mrs. McGee said if a student learns by hearing, then staring at a book for five hours will be fruitless. That child should read the lesson material into a tape recorder, and play it back. "How would you like the frustation of getting hits and pieces every day and not being able to put it all together? What if it took you twice as long to write something down, and the teacher then told you to do it over again because it was too messy?" Mrs. McGee asked. Mrs. McGee said the schools are not equipped to handle: severe learn- ing disabilities. Children handicapped in this way receive the extra help they need at one of two residential schools in the province. Besides the guest speakers, the unit on the disabled has provided autobiographies•and biographies -on people who have risen Above their handicaps. Visits are planned to ARC Industries and the Queensway Nurs- AT FIRST HAND -- Cindy Bisback came to Hensall Public School to tell grade 7 and 8 students how cerebral palsy hos affected her life. She was one of a number -of speakers participating in a language . unit on the disabled. Aside from that quibble. Joyce said our government has done a great deal to make her sister comfortable. Joyce told the students that though Gloria has difficulty managing money, she loves to cook, and could give anyone lessons In caring for one's room and organizing one's drawers. She also enjoys movies and bowling. Joyce said others can make life easier for the mentally handicapped by just accepting them for what they are. - Area resource teacher Beth McGee approached the subject from another angle. She provided some exercises that gave students a glimpse into the world of learning disabilities. Though • not immediately as obvious as bliAd- ness, lameness or other physical ing Home as well as the Huron Hope School in Iluron Park. The program has already changed the students' perceptions about the , handicapped. They appreciated the candour of those who came to the school and opened themselves to all the students' questions. Although con- fessing to initial nervousness, one grade eight boy said "once we get talking, we realize itis just another person". Students said they have learned not to stare, to be more compassionate and more will to donate to charities, and now see the unfairness of treating someone with a disability like a lower class of human. One student spoke for all when he said "People with handicaps inspire others". 1 1