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Huron Expositor, 2016-06-01, Page 1The Huron Expositor has joined the online conversation... Follow us IJD Seaforth H ro www.seaforthhuronexpositor.com n $L50 HST included PM40064683R07605 Expositor Wednesday, June 1, 2016 HURON (: 0 T N T Y Health Unit Lyme Disease found in Seaforth Everspring Farms frustrated with vandals S'e4 forth i3raich 156 MA 7v� OOi]M. "o U •. Air Shaun Gregory Association of Bikers for Awareness, Training and Education (ABATE) came to the Seaforth Legion May 27 to promote the event known as A Tour of Duty Motorcycle Ride, which takes place on June 11 in Seaforth. (For more photos turn to page 8) Van makes epilepsy easier to manage Shaun Gregory Huron Expositor Having a seven-year-old with one of the most rare genetic disor- ders known to Canada comes with its challenges. Especially if the child is in a wheelchair, a simple trip to the local corner store can be a task of its own. That stress has been eliminated for the O'Reilly's. Directly after birth, Dean O'Reilly, 7, from one of the ham- lets just outside of Seaforth went through a string of tonic-clonic seizures (most commonly associ- ated to epilepsy). As well as the convulsions, global developmen- tal delays were also apparent. The diagnosis was determined early, which meant Dean had been distinguished as being behind in the functions related to cognitive, mobility and speech, compared to the average of males his age. As time went on, it was evident epilepsy played a key role into why these peculiar health episodes continued to happen. It wasn't until last year when the family found out exactly what was going on with their little boy. In June of 2015, the doctors, instead of using the term undi- agnosed, had an official answer, one that would give the O'Reilly's a better understanding. "He's one of about five in Canada, about 200 in the world, it's called, KCNQ2," commented Dean's mother Charlene O'Reilly and also added that this new finding is a specific disability affiliated to an epi- lepsy disorder. CONTINUED > PAGE 2