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Huron Expositor, 2016-12-14, Page 5Wednesday, December 14, 2016 • Huron Expositor 5 LHIN says no decisions have been made regarding Huron Perth hospice Lynda Hillman-Rapley Postmedia Network It starts with a great idea. That is the mantra of the Aviva Community Fund project. And that is what South Huron has - a good idea. Last week Jessica's House won this competition to the tune of $100.000 for the local residential hospice that will be available to anyone who receives a terminal or life threatening illness diagnosis. The process of this contest begins with a charity or com- munity organization that's mak- ing a local difference, and that group submits the idea. The number one way to be successful in this Aviva bid for the $100,000 was listed as "Result in change that posi- tively affects your community." Check. Jessica's House sent in their bid and received huge community support and won. "Jessica's House is for every person who requires this ser- vice, regardless of age, gender, economic status, race or reli- gion, or where they live in Huron and Perth counties," says committee member Deb Homuth. According to Bonnie Lysyk Auditor General in 2014, "Access to residential hospice beds is an issue in Huron County as identified by the SW LHIN. Although most people would prefer to die at home, most die in hospital. Aside from the compassionate aspect of this, caring for terminally ill patients in an acute-care hospi- tal is estimated to cost over 40% more than providing care in a hospital-based palliative -care unit. This is more than double the cost of providing care in a hospice bed and over 10 times more than providing at-home care." The premise behind Jessica's House is to bring a residential hospice to South Huron. It was named after 22 year old Jessica Hamather who had died in December 2015. The committee was well on its way to making the idea a reality when they applied to Aviva, while at the same time hoping the Local Integration Network (LHIN) would also see the need, as they are funding up to $105,000 per bed. Jessica's House would like three beds. The government provides no capital funding for residential hospices therefore all the funds to purchase the land and build and furnish the hospice must be incurred locally. Residential Hospice beds subsidized 60% by MoH (approx. $306) and the remainder (40%) must be secured through community fund raising every year. HOW WE GOT HERE In January a consulting team (Huron Perth Hospice Palliative Care Collaborative ) was formed with the result being that com- mittee would advise the LHIN as to who should get beds. That release is to come in January. The approval process began at the Huron Perth Residential Hospice Subcommittee, then the Huron Perth Palliative Care Collaboration. From there the SWLHIN Hospice Palliative Care Leadership SWLHIN board endorsement and then Ministry of Heath award and funding. The first two in the process have been done. With Huron -Perth being a priority of need, Jessica's House wanted to be at the table. They asked to be included in January. That did not happen, and as to why, SWLHIN CAO Michael Barrett said they had met with South Huron "on a couple of occasions and very aware of their community support." He said the reason Jessica's House was not at the table until November was because the request came from the South Huron Hospital Foundation and what they needed was someone from the community not the hospital. By November, ten months later, Kim Winbow Coordinator of Hospice and Bereavement Services was invited to a meeting. Payne explained to the Lake- shore Advance that, "The South Huron Hospital foundation was told we could not be at the table because we would be in conflict of interest. Then they told us we couldn't because the terms of reference didn't allow for a foundation even though in August Michael Barrett said at a meeting with all the communi- ties that it was 'about the right people being at the table He assured us we would be included. Kim Winbow is there now because she represents VON and her clinical experi- ence. Not because of her con- nection to Jessica's House, although she is from South Huron." The message relayed to the South Huron community from the LHIN was that there would be no decision - no release of information until January 2017. Again, that is not what happened. A reporter for the Beacon Herald wrote an article Decem- ber 2nd stating their (Stratford) hospice committee had received an early Christmas present that, "It's very likely Stratford and Perth County will be getting a residential hospice. That committee said "shovels are expected to break ground this summer." The article quoted a commit- tee member stating, "The target is aggressive. (The South West LHIN) want us to have it open by March 2018." The Residential Hospice Stratford Perth Steering Com- mittee had been working on getting approvals from the South West LHIN to build the centre of excellence for about three years. The committee announced to the media December 2 that their project was "moving ahead." They said they had received approvals just that morning. (December 2). "The Stratford -Perth hospice will have six beds inside a stand-alone building at Green- wood Court where the property will be leased for $1 a year. The number of beds could double over the next decades to accom- modate an aging population. There will be another hospice in the Clinton area with four beds, bringing the total number of beds between the two coun- ties to 10," In their Beacon Herald story they quoted a release from Lisa Penner, SWLHIN Palliative Care Network lead. "The commissioned study and report has been completed to inform a Huron Perth solu- tion for residential hospice." "..The proposed model includes a recommendation for a centralized location with a satellite: 6 beds in Stratford and 4 beds be located in the Clinton area. The Stratford site was rec- ommended because it is the most populous centre within Perth County and the Clinton area was recommended because it is central for Huron County. The ten beds are being optimally positioned to maxi- mize access for all residents of the Huron Perth sub -region..." South Huron Hospital associ- ation chair Kimberley Payne was shocked with this Beacon Herald news as just that morn- ing, their committee met with LHIN representatives and were told again there would be no decisions made until the new year. Another release, this one a statement from the South West LHIN on residential hospice planning in Huron Perth was sent Tuesday December 6th, "Although reports are circu- lating about the location of new hospice beds in Huron and Perth Counties, the South- west LHIN says no decisions have been made. We want to ensure that we locate these beds so that we serve the greatest number of people within those two counties, and at the same time ensure that we have enough beds in one location to provide an efficient and safe operation for the residential hospice." When the Lakeshore Advance asked Barrett about the discrepancy regarding the Beacon Herald story that used the information from Penner he said, "That is not correct. The community com- mittees have made recom- mendations to the board as to where the ten beds allocated for the region should go. That is their advice." From her position in South Huron, Payne told the Lake- shore Advance, "The LHIN paw liver 47. M itif P1RE PR EHTONSMARTS At least 80 percent of all fire deaths occur in home fires. Here are some smart Fire Prevention tips for protecting yourself and your family: ✓ Never leave candles burning unattended, and keep matches out of reach from children. ✓ Keep space heaters away from curtains and other flammable materials. V Install smoke alarms on every floor of your home and outside each bedroom, and test batteries monthly. issuing a statement last week (Penner release) saying that the study recommends a certain model has built expectations in both communities which is sus- pect at best and potentially very disappointing for people who are working hard for good solu- tions, which includes Jessica's House in South Huron, which is breaking ground in March 2017 not even considered/men- tioned in the model." Barrett told the Lakeshore Advance of the release penned under Lisa Penner's name, "That information was not intended to say a decision has been made." Barrett said nothing has been finalized and the board still has to consider all of the informa- tion. He expects that to happen early in the new year. "Our board only advises," he told the Lakeshore Advance adding there are two passionate com- munities (South Huron and Stratford) and they have done a "great job raising money." "Decisions related to residen- tial hospice development and funding are the responsibility of the South West LHIN Board. The South West LHIN Board of Directors will make this deci- sion early in 2017." HAVE AN OPINION? The Huron Expositor welcomes letters to the editor. They must be signed and accompanied by a phone number for information clarification. It is important to note, letters will not be printed without the author's name attached. All letters are subject to editing due to possible space restriction. Letters can be dropped off at the office, mailed or emailed: The Huron Expositor 8 Main St. P.O. Box69 Seaforth, ON NOK 1WO Shaun.Gregory@sunmedia.ca www.seaforthhuronexpositor co m