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The Times Advocate, 2007-09-05, Page 12Crossroads 12 Times -Advocate Wednesday, September 5, 2007 Zurich teen survives brain tumour, creates art for others By Nina Van Lieshout TIMES -ADVOCATE STAFF ZURICH — "Don't dwell on the past, look forward to the future. Everyday is a new day," says 17 -year-old Zurich resi- dent and brain tumour survivor Brent Steckle. While sitting down with Steckle, he recalls being sick a lot as a child. "I kept vomiting," says Steckle, explain- ing as a child he never remembered not having a headache, saying that vomiting regularly minimized the pressure in his head. Throughout his childhood years, Steckle's parents Cam and Kathy would often bring him to doctors frequently. "It was tough," says Steckle. He remembers on numerous occasions having to leave family functions or sport- ing events because he was sick to his stomach. When Steckle was seven and a half, he and his parents consulted with a different doctor, sending him to a pediatrician who immediately ordered a CT scan. It was then that Steckle fmally found out what was the matter — a brain tumour. Steckle explains, "This abnormal mass of tissue was in the middle of my head, blocking the flow of CSF fluid to my spine. The fluid was pressing on my brain and basically, I taught myself to vomit to relieve the pressure in my head. They fig- ured that I was born with this tumour and that I had never lived a day without having a headache." After a confirmed diagnosis, Steckle underwent shunt surgery. After spending three or four days in the hospital, he came out feeling a lot better. A year and a half later, unexpected news was received — Steckle's tumour showed it had doubled in size and needed to be biopsied to determine what type of tumour it was. Originally it was thought the tumour would not grow. After 10 hours of surgery and removing 85 per cent of the tumour which was for- tunately benign, the surgery was over. To remove the remaining 15 per cent was not worth the risk as it was a difficult location to get at. At nine years old, Steckle began regular MRI scans. "Every six months, I have one to moni- tor the tumour to see if it is growing. They could have given me radiation which would have killed the rest of the tumour after the surgery eight years ago, but it was not recommended due to the side effects," says Steckle. Recovering from the brain tumour took A heroic journey —After years of stuggling with the side effects of a brain tumour, I7 -year-old Zurich resident Brentt Steckle is keeping a positive outlook on life, creating art, hoping to become a chef and staying strong with the support of family and friends around him.Above left Jeff Brown of HighstreetAsset Management poses with Steckle who created two Inukshuk sculptures for a fundraiser. (photo/submitted) time, says Steckle, comparing it to rebooting your computer after it crashes. "It takes time to reboot and that was exactly how my brain was after the surgery," he explains. A few years ago, Steckle's spine curva- ture became more severe. Steckle explains that, "My scoliosis, which like my brain tumour is a result of the disease I was born with, neurofibro- matosis, began to become worse." Steckle then underwent two surgeries for posterior and anterior scoliosis. "The pain was excruciating and this was a horrible experience. There are no words to describe it," says Steckle. "It was the worst thing that has ever happened to me. Brain surgery was noth- ing compared to this," Steckle adds. Brent's Inukshuk An inukshuk is a piece of Inuit art built to be eternally symbolic of leadership, encouragement and to remind us of our dependence upon one another. 1 chose each stone by how it fits in, supports the one above it - - - aad the one below it. This clearly portrays the importance ofhow people support You throughout life. An Inukshuk is a product of co-operation, a unique creation of life. To the Buyer of my Inukshuk: "I WISH YOU HEALTH)1ND HAPPINESS THROUGHOUT YOUR LIFE. YOUR PARTICIPATION HERE TODAY HAS MADE A CONTRIBUTION TO SUPPORTING OTHERS LIKE ME, WHO APPRECIATE GREATLY YOUR KINDNESS AND GENEROSITY." THANK You FOR CARING!!! BRENT STECKLE Three more surgeries were completed after a staph infection had taken over. "Pain and confusion took over my life. I felt sick, weak and tired with hardly any strength left to fight," says Steckle, adding, "There were times I thought that I wouldn't make it." Thirty days later, Steckle came home for good, on intravenous. He then gradu- ated to oral antibiotics. "Finally, in September of last year, 17 months from when this whole ordeal had started, the metal in my back lifted due to the infection. I underwent surgery to remove the hardware from my back. That was finally when I was relieved from the pain." says Steckle. "Jan. 1 this year, I stopped taking antibiotics for good. I feel great and thank God I am here," adds Steckle. And throughout the years of pain Steckle has endured, he's never give up hope. In fact, recently when asked to speak at the Charity Golf Classic for Brain Tumour Foundation of Canada and Epilepsy Support Centre, the South Huron District High School graduate opened his speech with the following words of encourage- ment. "Everyone faces many challenges in life and I don't think that there is anyone out here that has not been confronted with difficulties in their lives, be it at home, work, with your health or life in general. Challenges bring opportunities and I feel that you must always be willing to accept and deal with your problems and what- ever comes your way," says Steckle. Steckle was not only the guest speaker at this fundraiser, but created two pieces of art which auctioned off at $600 each, totalling $1,200. The Inukshuks Steckle made are pieces of Inuit stone carvings that eternally sym- bolize leadership, encouragement and a reminder of our dependence on each other. Each Inukshuk auctioned off was accompanied by a written letter from Steckle, explaining the significance of the sculptures. The event was a success, raising $74,000 through the day of golf, dinner and live and silent auctions. When asked how Steckle felt guest speaking and creating art for the fundraiser, he said, "I feel good." Brain Tumour Foundation of Canada representative Paul Mitchell described Steckle's speech and artwork, "His speech was as beautiful and awe-spiring as his art. When he had finished telling his story of the medical ordeals and pro- cedure he has undergone, all in atten- dance had been touched by the emotional impact of his incredible journey of hope." Steckle says these comments make him "feel really good." "We are so proud of him," explained his mother Kathy, adding "he's truly an inspiration to all of us." Steckle is planning on returning to SHDHS next year for an apprenticeship, hopefully at Eddington's in Exeter. He's not planning on fulfilling an art career, but rather becoming a chef. "I'm pretty focused on being a chef," says Steckle, who lives in Zurich with his parents and brother Shawn and sister Valerie. And as for advice for others experienc- ing a similar journey, Steckle advises to "be strong. You don't need to worry. You may be different but you're also special." For more information on the Brain Tumour Foundation of Canada visit www. braintumour. ca