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Wingham Advance-Times, 1977-10-26, Page 14kieY ,+••,; fe:4: ' 41.4.1g4,614;14,04144.11.,:ti.,44,1, , ft,- • tato The Wingham Advance -Times, October 26, 1977 avonne Ballagh Joy before de "Y Veswith death 24 hours a day. ut the most difficult death to face is one's own. One girl did — and experienced a "peace of the most profound serenity", a joy before.death. 0-0—o On a warm day in June 950, a daughter was born to -lartand Mrs. George Hilliard. Mr. Hil- liard's sister was Mrs. R. H. Turnbull, whose husband, Rev. R. H. Turnbull had served the Belmore United Church charge in the early 1930s. Their last charge was in Toronto and after retire- ment they went to Florida. The Hilliards named their daughter Anya Maureen. A bright perceptive child, she was to grow up to become an attrac- tive and brilliant young lady, graduating from Yale University in June 197. She then enrolled in Candler School of Theology in At- lanta, Georgia. But Anya Maureen Hilliard's purpose in life was not to be a theologian, nor even to graudate from Candler. A short time after her admission to Candler, she learned she was terminally ill with leukemia. She was face to face with her own death and des- truction. Life, which had once looked so hopeful and promising, now held new meaning — and new dread. Every minute was precious but also brought terror because it brought her cl?ser to that day when life would end. 0-0-0 Man is strange. He complains about the cruel hand dealt him by life; he maintains that there must be a better way; he regrets the way the world is going. Yet he seldom considers the alternative. Death is the final enemy — a struggle from which no man re- turns. Yet it seems to be "every- one else's problem, not mine". The "I am indestructible" atti- tude shows itself in many ways. Man refuses to make a will be- cause a will speaks for a dead man. He makes no plans for his funeral or final resting place be- cause this only reminds him that this fine specimen of manhood will one day turn to dust. Life in- surance is a ripoff and besides, why should he worry about his family now? He's young. Death only comes to the aged and then it is a friend, an everlasting pain- less sleep. FEAR BEGINS EARLY Of all man's fears, the fear of death, or necrophobia, is one of the most common. Our hate affair with death begins when we are children. Grandma becomes sick and is taken to a hospital, which to a child is a big,white, strong -smelling building where he isn't allowed to talk above a whisper or have any fun. Even at that, he is lucky if he sees Grandma one a month. Finally, in this great mysterS, that people call life, Grandma disappears. Mother cries and explains that Grandma has gone to sleep and will never waken. The child is ex- pected to remember Grandma "the way she was". She is taken to an impersonal funeral home where she rests where hundreds of others have rested — on the west wall facing a beautiful painting of a landscape, flanked by colored scented candles, completely surrounded by purple velvet. Junior isn't taken to the funeral home be- cause the experience 'night be npsetting. Two days later, he sits, in awe as somebody soleinnly talks -about death.. And he starts to hate this Death for taking Grandma, for making Mother cry and for making so many people unhappy. He is taken home and expected to adjust to a loss he never understood. And his bitter- ness and hate only increase. Subconsciously, as this child grows older and tries to under- stand death, his bitterness turns to fear. He becomes Grandma. He sees illness taking him away from family -and friends, he sees himself lying on that sickbed — the humiliation of asking for a bedpan, the awful feeling of becoming a number, a statistic. The inhumanity of being fastened to a machine, the hurt of hearing your family quarreling about your money when they think you are "too far gone" to hear. And we don't want it to happen to us. Death means extinction. It is the end of the world, a disaster which rends us from our homes, our families, our friends. It is the end of. all our dreams, our hopes, our enjoyment. It is the end of "Me". NOT ALWAYS AN ENEMY Modern science and technology have cheated death in many ways. The Biblical "threescore years and ten" no longer applies. In the 1970s, it is more like four- score and ten. But lengthening life isnot always good. And death is not always an enemy. Life can become a mere existence, for some a nothingness, for others torture and suffering. Karen Ann Quinlan existed for two years with the help of Machines. Her parents ,pleaded with the doctors to disconnect them and let her die with dignity: After a long and hard-fought court battle, they won their ap- peal and she •was taken from the machines and moved to a nursing home. But she did not die. She confirmed her meaningless noth- ingness. For Karen ,Ann, death would be a friend. Because of her experience the Euthanasia Educational Council in the United States has prepared a "Living Will" which will hope- fully prevent this from happening to others. It reads in part: "If the time comes when I (name) can no longer take part in decisions for my own future, let this state- ment stand as an expression of my wishes, while I am still of sound mind. If the situation should arise in which there is no reasonable expectation of my recovery from physical or mental disability, I request that I be allowed to die and not be kept alive by artificial means or heroie measures. I, therefore, ask that medication be merci- fully administered to me to al- leviate suffering even though this may hasten the moment of death". , „- - • ',0;;A:10105P4Ifor (0, e •,a LAST WILL—Signing a last will and testament not only sig- nifies you realize death Is a part of living, but it ensures that your wishes are carried out after you are gone. Many people who refuse to sign a will, for fear of facing reality or for whatever reason, leave only confusion for loved ones when death Occurs. Though the Living Will is not legally binding, it has won ap- proval of Lawyers and doctors. If people decide they want one, they are asked to make three signed copies, one for themselves, one for their doctor and one for a close relative or friend. And it must be redated and initialed annually. THE FIVE STAGES Dr. Elisabeth Kubler-Ross, in her book, "On Death and Dying", tells of her interviews and work with the dying. She speaks of five different stages or attitudes that patients experience as they face their own deaths. The initial denial, she writes, is "usually a temporary defense", a feeling that the doctors must be wrong for such a thing could "never happen to me". But she maintains that this denial is necessary for many patients who need it "to remain sane" and must get on with the business of living. This denial stage is often manifested by going elsewhere for help,' often to a faith healer. The patient comes back with no doubt that he is healed, because he cannot believe that the death sentence is meant for him. Following this feeling of denial, comes a feeling of anger. This stage is often most difficult for family members and those work- ing with the dying patient. His anger very often becomes "dis- placed in all directions and pro- jected onto the environment at times almost at random". The dying patient is angry be- cause he feels cheated. He sees others enjoying life and he is angry because they are more for- tunate than he. He asks "Why me?" He has always lived a better life than his neighbor; why should he be the one to suffer while his neighbor has never had a sick day in his life? Everyone becomes the target of his anger. He even points his anger and bitterness toward God for "deal- ing him this rotten hand" but in the end, his anger will only alienate him from others and destroy his inner resources. The third stage is the stage of bargaining, a period in which the dying person tries to com- promise. In desperation, he tries to postpone the inevitable,a Most of his bargains are made with God. He promises all kinds of things if he is given more time. He will go to church every Sun- day if he is granted a new lease on life; he will dedicate his life to God's service. He wants just ,"one more chance" and he will promise anything to get that last chance. When the last chance does not Come, he enters the fourth stage, depression. This overwhelming feeling smothers the dying patient for two reasons. First, he suffers from a "reactive" depression because of the cir- cumstances surrounding his life. He is worried because he feels his family may not be able to cope or important matters will not be looked after. He is'sad because he feels his death will create such • traumatic change for others that they will be unable to adjust to it. He regrets all the things he did not do when he was well and all the opportbnities that were lost. The second kind of depression is preparatory, a silent mourning • period during which the patient tries to prepare himself for the breaking of all ties,'the snatching away from the wotld and every- one he loves. It is often during this time that the patient will ask for his hope to be bolstered and reassurance to be given that what lies ahead is good. He needs this look ahead— to the last stage — the stage of acceptance. • The final stage is one of quiet resignation. It is- a time when the dying patient wishes to be left alone. He is preparing himself for the final moment, clearing his mind of all memory and looking only ahead. It is easier, writes Dr. Kubler-Ross, if patients "are allowed and helped to detach themselves slowly from all the meaningful relationships in their life". This is also the stage which is most difficult for the patient's loved ones. There is little com- munication and at times, not much acknowledgment. But these silent moments can also be most meaningful for people who are "not uncomfortable in the p'resence of a dying person". It was such a meaningful moment I experienced a few years ago when I visited a friend in hospital two weeks before she died. She was weak and sick and knew her time was brief. She dreaded hearing the meal carts being wheeled down the corridor for she could not keep even a mouthful of water on her stomach. But she talked of accep- aa• th tance. Her children were all grown, they no longer needed her. And she wasn't afraid. There was something special about that hospital room — al- most a holiness there. Leaving her and stepping into the corridor was like'stepping out of the sun- light. This was only one meaning- ful moment shared dtirhag that last stage of acceptance. WORKING CLOSELY WITH THE DYING Unfortunately medical sehrwo, do not always teach human un- derstanding. A recent • report from the provincial health dis- ciplines board says that too often patients are not treated as people ,.DoctOrs know everything about human anatomy and how to treat every physical illness but "empathy', courtesy and other characteristics usually as- sociated with a caring indi- vidual" are sadly neglected. During a 15 -month period, 85 complaints were heard from pa- tients who cited mainly com- munication or personality prob- lems experienced with their physicians who seemed "arro- gant and insensitive". "As- sembly -line" methods that treat the patient more like a machine than a human being Were a concern to the board. The doctor is almost always able to lessen physical suffering but finds it difficult to answer the mental and emotional needs of the dying patient. One clergyman said he would like to see more teamwork, the doctor and clergy- man working together during the last months to bring the patient to acceptance. Most • doctors are honest with their patients. "You can't fool too many people," said one. But they do take into con- sideration a patient's "ability to accept". If they feel it is wiser to keep such information from a pa- tient, they will delay the verdict as long as possible. As the lengthy torture of a terminal illness proceeds, how- ever, the patient is frequently left alone. One doctor believes this is because people are "afraid" to face the truth. Doctors' visits are less frequent and usually brief. Nurses let bells ring unanswered because they are afraid they will be confronted with , questions. Even some clergymen lack an- swers and therefore do not viit as often as before. For the dying patient, that final stage of accep- tance must often be reached alone because there is no one else around. Those working closely with the dying patient all agree that "some breeze through it; others fight until the end". Very often those who "breeze through it" rely on a strong religious faith. They believe that life on the other side is peaceful and joyful and the last moments before death are a beginning -of that life. One doctor admits, though, that "breezing through it" is not always good, for it means the patient has "let go of life". He stops fighting and wants to die. • For sane, death is accepted because they are content with, their lives and feel they are ready to die. No strong faith accom- panies their journey into the un- known but they can confidently believe that life has been meaningful for them and they are not afraid of what lies ahead, though they cannot begin to understand it. Clergymen and doctors alike believe that in his own mind, man is basically a hopeful being. "Most people believe in some form of life after death," one clergyman said. Since man is basically spiritual', even the non- believer wants to cling to some hope that there is something better, but many doubt. They want that reassurance that God is Love and life goes on. Very often, as. death grows nearer, they will ask for that reassurance from visiting clergy.' MUCH TO GIVE The dying, in their weakness, still have much to give. "Humility, patience through suffering, deep faith, assurance" were only some of the qualities which were shared by those who were closest to them in their last hours. One clergyman said, "Some are a pillar of strength; I don't give them something, they give me sofnething". One doctor described death as having a great deal of "beauty" — beauty that modern society has taken away because "death has become an institution, a disease". He blames much of this on the im- personal way we treat death — removing the patient from home and loved ones where he is near all the latest wonders of modern technology but far from the love and security he once knew. When it comes to himself, the doctor says, he would rather die at borne than in a ward surrounded by strangers, being treated by nurses who are "scared.of me". A British doctor recently created a great deal of contro- versy when he predicted that a "death pill" would be available, maybe even obligatory, by the end of the century. Dr. John Goundry believes that keeping the aged alive is "meddling" and that modern geriatric medicine fails to realize that "death cannot be avoided". Local doctors feel this prediction is ridiculous. They believe (and hope) it will never become reality in Canada. Do they feel geriatric medicine is "meddling" in God's plan for the living? "Absolutely not !", said one. "It is making the twilight years more beautiful and livable." They agree, however, that where no real life exists and a patient is being kept alive by machines only, death is indeed'a friend. ONE GIRL'S JOY Sooner or later, each man in his own heart must face the realiza- tion that he is not indestructible. The sooner man reaches some kind of acceptance, the easier life will be. With that acceptance will come peace of mind and joy — the joy Anya Maureen Hilliard wrote about in a meditation on, "Joy Before Death". "In recent years there has been a brisk growth in the medical 6rofessions concerning the phenomena of death. We read articles and studies on the dying —on their stages of denial, rejec- tion, acceptance, withdrawal — and it is neessary to gain this 1 1 1 1 .7r T.•!: 71.'",19E-a'-^,TiaNCS:a."„p7,11t,f.'4iX" knowledge: but there are other voices, even in our day. And though they are the voices that perhaps are best heard in poetry, or in music, I would like to affirm with my own voice. Affirm, not a stage, or a period, but a Being in Joy. For I am dying of a terminal ,disease and in my own humble way, I believe that I have wrestled, perhaps only in a most elementary and primitive fashion, with the central dilemmas of death and mortality. No amount of my struggle, no amount of my thought, gained more than a temporary, unrea- listic stage; an extremely tenuous and shadowy under- standing of our frail and anguished life. Strangely, though at the time of these struggles I was once again restructuring my Christian faith, ,I was not ex- plicitly seeking a religious an- swer. I was restless. But I was quietly blessed with Joy, not dramatically, but with Joy, as a gift of the Spirit, a reality of Grace. I am compelled to speak, of this Joy: for, while we read of its presence in the scriptures or in famous memoirs, or hear of it at the death -bed and at revivals, I doubt if it is more than an illusive mirage to most of us. We do not realize it in its vibrant, living form. This Joy is not founded in the fantasies and promises of an- other world. It is not based in a frantic yearning for Paradise. Nor is it a denial of the validity and vitality of this world. It rejoices in life. Nor does it seek to disengage from human relations. It embraces the sorroWe of men and women, and their dreams. Nor does it ignore suffering 'or pain; for truly Joy itself rose out of agony. Joy is peace .. . A peace of the most profound serenity. I can only say that we accept this peace in its simplicity, as the children of God. I am startled by the finite limitations of the intel- lect here,. for I cannot conceptua- lize this peace for you. But surely the life and action of the Spirit always breaks through concepts. Such joyful peace is . . . a reality, full of Grace and Truth. You see, the reality of the Joy of the Spirit, is that it does not allow you to compartmentalize death. You cannot separate it from life — shutting the hospital doors or closing the clinical study book, or desperately sewing away the memoriesof a lost loVed one. You live with death 24 hours a day. However, Joy with amazing sim- plicity washes away the ordinary human understanding of time and space, of past and future. Dimly, one perceives and ex- periences the Eternal. The Eternal — a breathless peace." Anya Maureen Hilliard wrote and delivered this meditation to her fellow students in February of 1973. On May 28 of that year, she entered the "breathless peace", not fearing what lay beyond. The purpose of her life may have rested in those final words she spoke as she told everyone, "You live with death 24 hours a day". She began her Eternity in life — "breathless peace" which began with peace of mind as she learned that death is merely a continuation of life and it can be a good life as we learn that only as the continuing process of birth, life and death revolves in an ever -moving cycle, can we experience joy "in its vibrant living form". Joy, for Anya Maureen Hil- liard, began before death and continued, to carry her through the valley of the shadow and be- yond, washing away human understanding and enveloping her in the Eternal Breathless Peace. Lower cost Money Available Here When you need money mortgage money get it here at Victoria and Grey Trust where money rental cos are now at a lower rate. 1/1C7ORMand GREY VG TRUST COMPANY SNC E 1E109 O. N. Lefebvre, Manager, Listowel, Ontario You're asking Why "wine and liquor lists do not include a list of non-alcoholic drinks"...why "alternative non- alcoholic punches aren't offered at parties' ...why "people are always trying to spike' your drinks" ...wtly "if, a drunk gets behind the wheel of a car and his wife reports him, nothing is done — she is a trouble -maker - unless he kills someone," You're concerned "Society makes you feel like a freak if you don't drink".,," the You're talking about the problems of alcohol in everyday life — and that's bringing them into the open. You've written in from coast to coast in response to 'Dialo§ue on drinking' to share your suggestions, experiences and reactions. It's 'Clear that responsible citizens — drinkers, non-drinkers, social drinkers, ex -drinkers, teenagers, grandparents, social workers, students — are concerned about Canada's alcohol problems. All agree there is a crying need for moderation along with more information and education on alcohol-related problems and some feel there is a need for a change in attitude because "often more tolerance is shown to the drunk than the non-drinker," even though responsible drinkers and non-drinkers are in the majority. message constantly creeched on TV is you have to drink"..."25 glossy liquor ads ran in the same issue of the magazine as your black and white ad showing the other side"..."the macho image requires that a real 'he-man' be a hard -drinking hero:" You're pointing out "In many small towns in Canada the only social activity is to go down to the local hotel for a few drinks,"..."I'd rather sit next to a smokelr on an aircraft than next to a drunk but I don't see any non - drinking sections"..."1 am not advising absolute abstinence but am absolutely convinced of the immorality of permitting oneself to become so intoxicated that one inflicts harm on others." You're suggesting "A series of radio or TV programs showing realistically what happens when a person drinks too much" ..."bans or controls on advertising" ..."very severe penalties for im- paired drivers"..."courses for senior girls intent on marrying young on handling the situation of a drunk husband." Andmyou're doing! In Ontario, the Thunder Bay , Committee for 'Dialogue on drinking' is well on its way... in Nova Scotia. local committees have joined with service clubs to discuss with hundreds of people, alcohol and its impact on the commun4y. .. in Rothesay, New Brunswick. 40 Knights of Colum- • bus have asked how they can help in northern Manitoba, 'Dialogue posters are appearing everywhere even in tlielotel washrooms.. Medicine Hat. Alberta, has its Alcohorin the Community Program ...and in Vancouver, teenagers petitioned against opening two liquor stores because some of their friends had been killed by drunk drivers. Now, we're talking! We're tall -sing about the problems alcohol can cause...but better, we're doing something about them together...and because of your • efforts, a more responsible attitude to drinking is emerging. "I see my own and my peers' attitudes changing. Instead of bragging how drunk we got bn a particular night, we are more apt to take pride in being able to . control our consumption at a reasonable level." And that, after all is what Dialoguekon drinking' is all about • it's a program to help you talk about and do something about drinking problems. We'd like to h e.a r more from you. Dialogue on drinking Ideas from concerned citizens and Operation Lifestyle. 1* Health Sante et and Welfate Bien -etre social Canada Canada Box 8888, Ottawa Addiction Research Foundation of Ontario, 33 Russell Street, Toronto with Centres across the Province 1 1 1 1 1