HomeMy WebLinkAboutLucknow Sentinel, 2009-09-16, Page 22Page 22 - Lucknow Sentinel, Wednesday, September 16, 2009
Epilepsy Huron -Perth -Bruce may close doors
BY SUSAN
HUNPERTMARK
Huron Expositor Staff
Epilepsy . Huron -Perth -Bruce
will be maidng the decision on.
Sept. 31 about whether it will
have to close its doors.
Executive director Lynne
Armstrong, along with several
Epilepsy Huron -Perth -Bruce
board members, attended the
first-ever South West LHIN
"board engagement session" in
Seaforth last Wednesday to
repeat a request for base funding
for the local organization.
"If we don't receive public
funding, we won't be in opera-
tion next year," said Armstrong,
adding that Epilepsy Huron -
Perth -Brice is currently $40,000
short of the. $85,000 it needs to
fundraise every year to exist.
The South West Local Health -
Integration Network is
holding board meetings outside
of Lonclon to talk about shared
concerns in the healthcare sys-
tem throughout Southwestern
Ontario.
Lorraine Devereaux, chair of
the Epilepsy Huron -Perth -Bruce
board, told LH1N board mem-
bers that despite a high need for
the organization's services,
finances are threatening the
group's survival.
"We consistently have to
fundraise to keep going and we
are now at a point where we
can't survive without funding.
It's, a terrible environment to
exist in, being dependent on the
general population to keep ' the
doors open," she said.
Noon Gamble, chair of the
South West LHIN, responded
that the LHIN doesn't have the
ability to add orgytions
which have not traditionally
been funded by the provincial
government.
"We might . be able to give
one-time funding but that type
of spoon feeding is not good :for
an organization and will eve
ally come back and bite you," he
said.
However, Gamble acknowl-
edged that the South West LHIN
needs to get to the point where it
reviews the 150 organizations.
that are provincially funded and
determine if that funding is justi-
fied.
Brian Melady, a board mem-
ber for Epilepsy Huron -Perth -
Bruce, told the LHIN board
members that the Epilepsy
organization significantly
reduces costs for both the
provincial health care system
and the education system by
educating families and school
communities about the neuro-
logical, condition, preventing
visits to emergency departments
and ambulance rides.
''When my five-year-old has_
a,
seizure at school, ' than
ng the they real-
ize they just need my seven-
year-old to . make my son Com-
fortable and 45 minutes later,
he's _ around healthy as
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can be," explained Melady.
He said 35 per cent of the
organization's funding comes
from the United Way and the
other 65 per cent is a result of
fund-raising by volunteers and
staff.
"There would be a huge cost
burden on the Ministry'of Health'
and the IVfmisty of Education
without us," he said.
When LHIN board member
Linda Stevenson asked what the
impact would be if the local
Epilepsy chapter closed,
Epilepsy board member Lia.
Brown responded that clients
could be referred to.London
where a huge geographical area
is already being served
Melady also pointed out that
many family physicians and
other health care workers ate not
experts in epilepsy and don't
have the answers the organiza-
tion does.
"As difficult ass it is, we need
to focus on services, not otgan
nations," responded Gamble.
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Sept. 16 solution