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Five-year-old Kloe Livingston will be cutting her long blonde hair for Angel Hair
Fund (a charity which helps young children who are battling cancer) on May 28,
her birthday, and she will also be raising awareness for a genetic disorder she
has called Prader -Willi Syndrome (PWS).
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Local girl givin
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cutting off loc
BY GA IT RED
Sentinel Staff
Kloe Livingston is
preparing to do something
extraordinary with her
hair on her May 28, birth
day, at Shear Design by
Sally. She will be giving
away a great gift: 15 inch-
es of her hair to Angel
Hair Fund (a charity
which helps young chil-
dren who are tittling can-
cer).
The selfless act amazes
her family and friends
because not only is she
giving up some of - her
long ;blonde hair to chari-
ty, she also lives with a
rare genetic disorder
called Prader -Willi
Syndrome (PWS).
PWS isn't as physically
apparent in Kloe as it is
with many. - other PWS
individuals, so the
Livingstons thought the
event would let people.
know about PWS through
Kloe's , generous act of
cutting her hair for Angel
Hair.
"One day around
Christmas time, Kloe
decided that she wanted to
cut her hair and donate it.
So from that we thought
we would turn it into a
fund-raising/awareness
event," said Kloe's mom,
Danielle. "Kloe's issue is
PWS. We wanted ` to let
people know that they can
donate to PWS and Kloe
is going to in turn give
back to another child in
need, by giving her hair."
PWS is a rare chromo-
some disorder that has
clinical findings of small
hands and feet, abnormal
growth and body compo-
sition (small stature, low
lean body mass and early
onset childhood obesity,.
learning disabilities in
some and an insatiable.
hunger.)
The constant hunger
won't allow Kloe to be
left alone and she will
have to have 24-hour
supervision, but ',with
early detection of the syn-
drome it has helped Kloe
stay healthy.
Raising awareness for
PWS will not only be
good . for informing the
community about the syn-
drome, but it will help her
fellow classmates at
school understand what
she goes through on a
given day.
She has a strict diet and:
Kloe's parents realize let-
ting people know about
PWS will benefit their
'daughter, keeping her safe
and healthy. 3 ..
It's not the .factthat she
should -be given special
treatment,. but her parents
believe it's beneficial for
her safety that people
know of. .her condition.
They will be. aware of.
what she can eat, what she
can't eat and how much
• she can eat.
It has also educated her
parents .Kirk and Danielle
Livingston on what the
syndrome is all about and
they hope their knowl-
edge can 'help ,other par-
ents, so they can help
their children right away.
"Early detection has
been one of the key rea-
sons why Kloe has done
so well," said Danielle.
"Also with educating our-
selves on what is going
on, 'so -We can be one step•
ahead of it."
Continued on page 2
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