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HomeMy WebLinkAboutHuron Expositor, 2007-10-31, Page 9-r News The Huron Expositor • October 31, 2007 Page 9 Nov. 10 benefit will help nine -month-old Kailee Kennedy who is facing open-heart surgery Jennifer Hubbard MEEMEMBEEMO Friends, family and the Vanastra- area community are joining togeth- er to host a Nov. 10 benefit to help a local family and their daughter, who is facing open heart surgery later this month. With two healthy children - Cordell and Paige, ages five and three - Eric and Lori Kennedy were surprised to find complications seven months into their third preg- nancy. Born on Jan. 2, 2007 at St. Joseph's hospital in London, weigh- ing just four pounds, one ounce, Kailee Kennedy was diagnosed with congenital heart disease and Pierre Robin sequence - resulting in a secondary cleft palate and a recessed chin. The newest member of the Kennedy family has been able to visit home only seven nights since her birth. Due to her medical complications, a tracheotomy and feeding tube are necessary. "This is something we never dreamt would happen, we have two healthy children," Lori explained. "Other than it being a genetic dis- order, we have no actual diagnosis. The doctor told us that it could be the beginning of something new... it's a mystery." Kailee has since been transferred to the London Children's Hospital, where she receives constant medical care. The couple travels to London nearly every day to spend time with their daughter. And though both Eric and Lori have been trained in aspects of Kailee's care, a 24-hour nurse is required during any home visits. "If I look back a year or two ago, I couldn't imagine learning all of this stuff. It's something I thought nurs- es did, but it's amazing what you do when you have to," she said. , "It's very difficult to get care for children with high needs in this area. We've put a few ads in the paper, but we're no further ahead now than we were in June." Dividing their time between Kailee in London and Cordell and Paige ages five and three - at home, has definitely been challeng- ing, the parents agree. But help from family, friends and community groups like the Lions Club, Kinettes and Kinsmen have made the experience a little easier. "Our friends and family were real- ly there for us, and they continue to be there for us whenever we need them," Lori said. "I've been pleasantly surprised by how much people in the community care and how much they have done Lori and Eric Kennedy, of Cordell and Kailee. for us." Eric added the medical staff at the London hospitals have also been very supportive and understanding. "They've made it 100 per cent eas- ier and we've developed a real con- nection and bond with them." Kailee will soon be transferred to Toronto for open heart surgery on Oct. 30 to repair her aortic valve and two holes in her heart. The Kennedys hope to welcome Kailee into their Vanastra home as soon as possible, but the medical equipment and home care required to make that possible will be costly. "Some of the expenses are covered by health insurance, but there's oth- ers that are just at 75 per cent," Eric explained. "Even with that 75 per cent some of the costs are unreal." With hopes of easing the couple's financial burden, the Kennedys' friends and family have been meet- ing regularly to organize a fundrais- er. "I've seen some of the bills that Eric and Lori are facing and we're hoping the money we raise will help cover some of those costs and the future costs of caring for Kailee," friend David Whyte explained. "It has no doubt put the family under a great emotional and finan- cial strain in their effort to main- tain a sense of belonging and family with her in London, all the while still trying to work and live with their two other children in Vanastra." Whyte plays on the Ringling Bros. baseball team along with Eric. He said the Seaforth-based team will helping at the fundraiser, which is Jennifer Hubbard photo Vanastra and their children Paige, set for Nov.10 at the Vanastra Recreation Centre. The commu- nity -organized event will fea- ture a dance, silent auction, from 7-11 p.m. and euchre tour- nament, from 7-9 -p.m. The dance will run through- out the night, ending at 1 a.m. Age of majori- ty is required and late lunch will be provided. "We've held off on holding a benefit event because for awhile we thought we were going to lose her," said Jenn Ducharme, Kailee's aunt. "But Kailee's a little fighter and she's proved to all of us that she's not going anywhere." Tickets are $5 each and can be purchased through friends and fam- ily or at the door that night. "I don't think there's a specific amount of money we want to raise, just enough to relieve some of the financial pressure and strain," added Alyssa McLachlan, Kailee's aunt. For more information, contact Ducharme at (519.) 482-7984 or Whyte at (519) 527-2439. A website www.tcc.on.cal—hcwcaq/RinglingBro s/K.ailee - has also been created. Ducharme said response to the event has been "phenomenal" so far, with many area residents, business- es and organizations offering their support. Anyone wishing to make a dona- tion "in trust for Kailee Kennedy," can do so at the Royal Bank of Canada, through account number 5041561. ."We don't know what the future holds, so we have to worry about today, not tomorrow. Otherwise it just gets to be too overwhelming," Lori said. Kindergarten Registration 2008-2009 November 5 - 30 at Your Community Public School Times and Locations Seaforth & Area Schools All sessions begin at 9:00 am Monday, November 5 Brussels PS Call 519-$$74361 Friday, November 9 Huron CentennialPSCall 519-233-3330 'Tuesday, November 13 Seaforth PS Call 519-527-0790 Wednesday, November 14 Blyth PS Call 519-523-9201 Wednesday, November 21 Grey Central . Ca11519-07 1 Junior Kindergarte %ry Vex. 34, tOCiti CAnadrevk3 Aft tIW5 tifflAtireitetA 101.005. Geoff Mmnams k' Dlractor of Education • The Avon Maitland District School Board and its community public elementary schools are proud to offer a quality teaming opportunity for our young citizens entering school in fall 2008. During the month of November we celebrate the registration, with special activities at many schools, such as crafts, story time, music and refreshments. Parents can learn more about their child's development, learn about local programs and services, and get tips on how to prepare their child for school. For further information call your school or 1-800-592-5437. Senior Kindergarten ClIildret, 4 Hewrs 41id 14 Dec. 34, Zook Are erlifwe for Senior kiAdersarteh in Zoos. www:yourschools.ca Jenny 1Mrstep Chair