HomeMy WebLinkAboutThe Goderich Signal-Star, 2009-04-29, Page 11Lucknow girl offers hair for hope
°aril Reid
sun media
Kloe Livingston is pre-
paring to do something ex-
traordinary with her hair on
her sixth birthday on May
28, at Shear Design by Sal-.
ly in Lucknow. .
'She will be giving away a
great gift: 15 inches of her
hair to Angel. Hair Fund, a
charity which helps young
children who are battling
cancer.
The selfless act amazes
her family and friends be-
cause not only is she giving
up some of her long blonde
hair to charity, she also
lives with a rare genetic
disorder called Prader -Wil-
li Syndrome (PWS).
PWS isn't .as physically
apparent in Kloe as it is
with many other PWS indi-
viduals, so the Livingstons
thought the event would let
people know about PWS
through Kloe's generous
act of cutting her hair for
Angel Hair.
"One day around Christ-
mas time, Kloe decided
that she wanted to cut her
hair and donate it. So from
that we thought we would
turn it into a fund-raising/
awareness event," said
Kloe's mom, Danielle.
"Kloe's issue is PWS. We
wanted to let people know
that they can donate to
PWS and Kloe is going to
in turn give back to another
child in need, by giving her
hair."
PWS is a rare chromo-
some disorder that has
clinical findings of small
hands and feet, abnormal
growth and body composi-
tion (small stature, low lean
body mass and early onset
childhood obesity, learning
disabilities in some and an
insatiable hunger.)
The constant hunger
won't allow Kloe to be left
alone and she will have to
have 24-hour supervision,
but with early detection of
the syndrome it has helped
Kloe stay healthy.
Raising awareness for
PWS will not only be good
for informing the commu-
nity about the syndrome,
but it will help her fellow
classmates at school un-
derstand What she goes
through on a given day.
She has a strict diet and
Kloe's parents realize let-
ting people know about
PWS will benefit their
daughter, keeping her safe
and healthy.
It's not the fact, that she
Photo by Garit Reid
Little Lucknow lady Kloe Livingstong wilt soon sport a 'summer bob' after
she donates her blonde locks to the Angel Hair Fund. Kloe has been grow-
ing her hair in support of the cause.
should be given special
treatment, but her parents
believe it's beneficial for
her safety that people know
of her condition. They will
be aware of what she can
eat, what she can't eat and
how much she can eat.
It has also educated her
parents Kirk and Danielle
Livingston on what the
syndrome is all about and
they hope their knowledge
can help other parents, so
they can help their children
right away.
"Early detection has been
one of the key reasons why
Kloe has done so well,"
said Danielle. "Also with
educating ourselves on
what is going on, so we can
be one step ahead of it."
Kloe's parents are in awe
of their child with what she
deals with on any given day
and it helps them be stron-
ger because they know if
their child is able to get by
with the struggles she fac-
es, so can they.
"I really admire Kloe be-
cause that's quite a thing
to get through, just in one
day and spend your whole
life struggling with it," said
Danielle.
Kirk replied by say-
ing, "She'll never be left
alone, and she'll always be
supervised. She's growth
hormone deficient as well.
This is why she receives a
needle every day of growth
hormone due to her lack of
lean muscle mass and short
stature."
Kloe may have a lot of
things she struggles with
daily due to PWS, but you
wouldn't be able to tell
with the bright smile she
displays everywhere she
goes. It just goes to the fact
that the Livingston family
deals with the syndrome
in a controlled proper way
and it makes Kloe's life
better for it.
The Livingston fam-
ily will be raising money
during the month of May,
which is PWS awareness
month, which will culmi-
nate .with Kloe getting her
hair cut.
For people wanting to
donate, it's simple; Angel
Fund will use Kloe's hair
to help make a wig for a
child in need and your do-
nation will support PWS
research. The Foundation
for Prader -Willi Research
(FPWR) Canada is fo-
cused on funding research
to eliminate the challenges
that Kloe and all children
with PWS face everyday.
(Go to www.fpwr.org for
more info about PWS).
Support Kloe's cause and
sponsor her hair cutting ad-
venture today. You can do-
nate to Kloe in person, or
online at www.onesmall-
step.ca/kloe/kloe.aspDona-
tions can also be made at
Finsher's in Goderich.
Each $25 donation enters
you in a draw for a chance
to win a prize pack con-
sisting of a Toronto Maple
Leafs puck signed by de-
fenseman Tomas Kaberle
and a signed photograph
and T-shirt by forward
Matt Stajan. (Draw will
take place on June 1st).
Tax receipts will be is-
sued for all donations over
$20 by February 2010.
The Livingston family
is so proud of their little
angel and thank you in ad-
vance for your support and
generosity to the FPWR
Canada.
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