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The Citizen
THE CITIZEN, THURSDAY, FEBRUARY 9, 2006. PAGE 21.
EHPB works to increase awareness of epilepsy
Epilepsy Huron-Perth-Bruce's
(EHPB) mission is to increase the
level of public awareness in the
community so as to ensure that
people affected by epilepsy are able
to participate fully in all aspects of
community life.
At times, this, work is frustrating
and disconcerting, probably due to
the fact that epilepsy, for centuries,
has been stigmatized. It is hard to
believe that people still believe that
having a seizure means you are
possessed by some type of evil
spirits.
Can you imagine what it truly
feels like to drop down suddenly in
the grocery store unconscious, with
your body doing things you have no
control over; perhaps waking up to
find a group of onlookers staring at
you?
This happens to hundreds
of people living in the
community.
Would you know what to do? The
aforementioned seizure is only one
of over 40 different types of seizures
that people experience. Some you
may not even recognize a seizure as
you may think that the person you
are speaking to is in a daze?
Over the past 20 years, EHPB has
produced educational materials,
gave thousands of presentations,
visited people in their homes, visited
schools and workplaces and talked
about epilepsy.
Still people in the community feel
discriminated against.
Regardless of opinion, epilepsy is
a very big problem that needs
support. It is an important cause —
one that' is more important than the
risk of "negative PR".
In our struggle to raise awareness
of epilepsy within our community,
some points need repetition.
• Epilepsy is common — very, very
common. It affects more than 1.1 —
1.3 per cent of Canadians have
recurrent seizures.
• Epilepsy is a symptomatic
disorder, not a disease; any process
that can injure the brain (trauma,
stroke, infection, tumour, substance
abuse) can lead to epilepsy.
• Anyone at any age can develop
epilepsy, at any time; an accidental
fall down a staircase, involvement
in a motor vehicle accident or any
number of events can lead to
epilepsy.
• You probably know someone with
epilepsy, but you may not be aware
of it. Many people with epilepsy
choose not to discuss it because of
the myths, misconceptions and
prejudices that surround this
disorder.
• Many people with epilepsy live
normal, productive lives; people
from every walk of life (men,
women, children, professionals,
labourers, students, athletes, etc.)
have epilepsy.
• Epilepsy is not contagious.
• Epilepsy does not cause violent
behaviour or lead to "criminal
tendencies."
• Epilepsy does not lead to
"insanity."
• Epilepsy is the second most
common chronic neurological
disorder affecting humankind —
only chronic headache is a more
common problem.
• Unlike many disorders (stroke,
dementia) that tend to onset in the
later years of life, epilepsy most
commonly affects children and
young adults. Its socioeconomic
impact is immense, since it affects
people at the onset of their most
productive years.
• Epilepsy is not a minor "nuisance
problem." People can die from
epilepsy; sudden unexplained death
in epilepsy (SUDEP) is a tragic
occurrence in children and young
adults in Canada.
• There is no cure for epilepsy; no
drug can be taken to prevent the
onset of epilepsy after an injury,
such as a motor vehicle accident.
Drugs for epilepsy are merely
symptomatic agents that suppress
the occurrence of seizures, not the
onset of • epilepsy. Current
treatments for epilepsy are like
aspirin, offering symptomatic relief
but no cure.
• Since there is no cure to prevent
epilepsy, the management of
seizures and life style of the person .
with epilepsy are paramount.
• Compared to other chronic
neurological disorders (muscular
dystrophy, multiple sclerosis)
epilepsy is a grossly under-funded
medical disorder. Fundraising to
find the cause of epilepsy is
difficult — very, very difficult.
EHPB will continue with the
support of United Way to educate
and enlighten the community about
epilepsy, and support various
programs.
Please help in heightening
awareness in March (epilepsy
awareness month) by wearing a
lavender bracelet. These will be
available at many local businesses
during the Lavender campaign. Cost
is only $3 and all money raised will
stay in the local community to
support the programs.
For more information call us at
519-482-5527, fax 519-482-5379 or
e-mail epilepsy@tcc.on.ca
EFAO offers courses on ecological practices
Again this winter, the Ecological
Farmers Association of Ontario
(EFAO) is offering courses on
ecological and organic farm
practices in southwestern Ontario.
The two-day introduction to
ecological agriculture course will be
held in Clinton on Feb. 15 and 16
and in Comber on Feb. 28 and
March 1. This course provides an
introduction to the principles of
ecological and organic farming and
is designed to help participants
consider how they can make their
farm practices more ecological.
Topics covered include cover
crops, crop rotation, weed
management, livestock health,
composting and soil management.
Farmers considering the transition to
organic, experienced organic
farmers and new farmers will all find
the course valuable.
The cost of the course is $100 or
$150 for two people from the same
farm.
On March 7, EFAO will host a
special daylong seminar with Joe
Scrimger on soil health and fertility
in organic systems in Guelph. This
seminar will cover the importance of
minerals and soil biology in the soil
system, the soil food web and how
human and animal health is tied to—
soil health. The cost of the seminar
is $60 per person or $100 for two
people from the same farm, if pre-
registered, lunch included.
Two new one-day courses will be
offered in March. Finding the
balance - interpreting soil tests for
organic farmers will explore how to
better use soil tests and discuss soil
amendments allowed under organic
certification. The course will be held
in Sparta on March 18 and in
Wroxeter on March 22. A direct
marketing course which explores the
pros and cons of direct marketing
and different types of direct
marketing will be held in St. Marys
on March 25. The cost of these
courses is $40.
For more information or to register
for any of the above courses and
seminars contact Karen Maitland at
519-822-8606 or info@efao.ca
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