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HomeMy WebLinkAboutThe Citizen, 1987-11-04, Page 5For Jon Sanderson trip to Disney World was a very special occasion BY TOBY RAINEY Blyth’sownSunshineKidisa special young man, and what happened to him last week is still a main topic of conversation among hismanyfriendsatBlyth Public School. Six-year-old Jonathan Sander­ son. who has acute lymphoblastic leukemia, was one of 205 disabled, terminally or critically ill children from southwesternOntariowho were chosen for a 16-hour whirl­ wind trip to Walt Disney World in Florida on October 27, the inaug­ ural trip of the Sunshine Founda­ tion of Canada. Like most of the other kids who were picked for the dream trip, Jonathan was up well before 5a.m. on that rainy Tuesday, in order to be ready to leave from the London airport at 6 a.m. aboard one of the three Boeing 727's waiting on the runway for the two and one half hour flight to Orlando. When they arrived in bright Florida sunshine, buses were standing by to take the kids and their chaperones to the gigantic theme park, where they were met at the gate by Minnie Mouse, Donald Duck, Goofy, and a host of other larger-than-life characters from the Magic Kingdom who greeted the kids with loads of hugs andkisses. (Mickey Mouse was out golfing at the time, Jonathan says, but he did turn up later in the day). “The excitement and happiness of the kids is impossible to describe," said Elmer Sanderson, Jonathan’s father, who accompan­ ied his son on the trip as one of the 150 volunteers who went along to help. “Itwas apretty emotional time for everybody, and one I will certainly never forget." The group spent six hours doing the things that all tourists do in that magic world, including lining up to see the spectacular, hour-long All-America parade, which Jon and his Dad photographed to show the people back in Blyth. All too soon it was time to go back home, all in the same day, so that some of the kids would not miss out on the treatments many of them, including Jon, need regularly at the Children’s Hospital of Western Ontario. It was a gruelling sche­ dule, but throughout it all, not one of the small tourists was ever heard to complain, Mr. Sanderson said, and most of them never even slept until they were back in their own beds again by around midnight. “It was a marvellous experience for all of us, and I’d volunteer to go again on the next trip if I could," Mr. Sanderson said. “These kids have been through so much pain and suffering in their short lives that they certainly deserve to have one day of fun, when they can be just like any other kid." Thetripwas the first of its kind in Canada, and the beginning of what London organizers Ed and Donna Czach hope will be many more such outings for seriously ill children from the London area. Last week’s trip, which cost more than $150,000 was entirely financed by the U.S. division of the Sunshine Foundation as a way of drawing attention to its expansion into Canada. The Philadelphia-based non­ profit organization was founded in 1976 by police constable Bill Semple as a sort of dream factory foi special children all over the world - the organization learns the dreams of such children, then sets about making them come true. In 11 years, the Foundation has made a gift of happiness to more than 7,500 terminally-ill or disabled youngsters, with most of the $1 million spent annually raised through donations from indivi­ duals. The London chapter came about because the Czachs wanted to do something in memory of their 15-year-oldson, Paul, whodied just before Christmas two years ago, from muscular dystrophy. They wrote to Mr. Semple, who then telephoned them tourge them to start a London-based organiza­ tion. Mr. Semple came toOntario last Spring to meet the Czachs and London lawyer Norm Aitken, who had volunteered his help, and to persuade them that the Disney World trip would be great publicity for the new chapter. London organizers put together a board of directors, and began the paperwork to get the group charitable status. They approach­ ed the staff of the Children's Hospital of Western Ontario, the Thames Valley Children’s Centre and the Easter Seals Society to help find children for the trip, and the rest is history. Ed Czach says this is not a one-time effort. The Sunshine Foundation of Canada has been given six months free office space in London, and a host of volunteers have donated their time to keeping the place running. The organiza­ tion now has about $5,000 in its bank account, but says it hopes to see that turned into $500,000 a year to make kids’ dreams come true. Jonathan Sanderson is just one of those children, and it is an experience he and his family will cherish forever. His mother, Maria, was able to tape “every foot” of the extensive television coverage given to the trip, includ­ ing a shot of Jon and his Dad chatting with a clown on the plane back to London, so the family will be able to share the magic over and over again. Meanwhile, Jon is back to his old routine, attending his Grade One class on a fairly regular basis, interrupted only by his few “bad days’’ when his illness is most persistent, or by his weekly trips to the London clinic for chemother­ apy, usually accompanied by his mother and five-year-old brother Anthony, who has been afflicted with diabetes since the age of three and one half. Their Dad goes along when he can. The close-knit family takes life one day ata time, buoyed by the loving support of family and BY RAYMOND CANON The Pope and I were in the United States at the same time and I’ll leave it to your imagination to decide which of us got the greater press coverage. However, that having been said, Icanassureyouthatlhadavery good time which is perhaps more than 1 can say for John Paul; he must have been a bit depressed by all that he heard. About the only respite he had from all the litany of complaints was a short trip to Canada; he had planned to visit Ft. Simpson the last time that he was here but found his trip up north cancelled due to fog. This time around the necessary radar was in place and so the good people of that Arctic community were honoured by his visit. To put it bluntly the Americans, THE CITIZEN, WEDNESDAY, NOVEMBER 4, 1987. PAGE 5. Blyth’s “Sunshine Kid" Jonathan Sanderson, hugs the Disney World souvenirs he brought home for himself and his brother after a whirlwind trip to the Florida theme park. The Grade One student was one of 205 kids taken on the tour by the international Sunshine Foundation. friends and by their steadfast faith inGod. Jon’sillness is in remission now, and the next major landmark in their lives will come in February, when their gallant son completes the 109 weeks of chemotherapy prescribed by his doctors. The International Scene f and to a considerable degree the Canadiansalso, feel thatsince they live in an advanced society and are relatively up-to-date on religion, they have a right to question Catholic Dogma. The Pope's reply to all this, and he used it over and over again during the 10 days this side of the ocean, was that they do have the right to argue and discuss all they want but, at the end of the discussion, they must come back to full acceptance of the established doctrine and practice of the Catholic Church. What makes matters worse for the Pope, he has toface the fact that a great many of the North Americans who feel that they can question this dogma are of the opinion as well that they can differ in some respects and still remain a good Catholic. This includes devi­ “His doctor says that patients undergoing this type of therapy have a 50 per cent chance of staying in permanent remission once the treatment is discontinued," Mr. Sanderson says. “But as far as we’re concerned. I ating from the Church’s position on birth control or even having an abortion. The Pope’s reply to all this is a resounding “No!” “Dis- sentfrom Church doctrine remains exactly what it is,’’ he said: “dissent." He went out of his way to dispel the idea that a Catholic could choose to respect some of the Church’s moral teaching and disregard others and still be a good Catholic, eligible to receive com­ munion. The Pope must know that in many parishes, in spite of what he said in North America and else­ where, it is within the discretion of the local priest todecide whether or nottoadministerthesacraments to those members who have gone contrary to the Church’s teaching in such matters as birth control or divorce. Many of these same Jon’schancesare 100 per cent. We know that without God, he wouldn’t be with us now; and we know that he wouldn’t have had to suffer all this unless he was going to get better. ” Pope is fighting a losing battle priests are applying a rather liberal interpretation to all this but now and again some of the clergy go a bitfarin the eyes of the Vatican. So it was that Archibishop Hunthau­ sen of Seattle was recently stripped of his authority over five areas of church policy; one of these was reportedly that of allowing too many marriages between Catho­ lics to be annulled. However, in spite of this clamp­ ing down, it appears that the Pope might be fighting a losing battle. Archbishop Bernardin, while he personally sticks to the official line, permits his priests to make many of their own decisions as to whether, for example, they will use altar girls. In view of the brouhaha which arose earlier this year in Continued on page 6