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HomeMy WebLinkAboutThe Lucknow Sentinel, 2013-12-18, Page 22 Lucknow Sentinel • Wednesday, December 18, 2013 Submitted Luke and Zane Braun are seen enjoying some Christmas cheer. LUCKNOW ARENA SCHEDULE DECEMBER 18 - DECEMBER 24 Wed Dec 18, 2013 10am 5pm 6pm 7pm 8:30pm 9:30pm Open Skating - $2 Per Skater Atom Dev Practice Bantam Dev Practice PeeWee Rep vs Drayton Legends Practice Rec League Kintail vs Dirty Byrd Fri Dec 20, 2013 10am 1:45pm 4:45pm 5:45pm 6:45pm 8pm 9:30pm Open Skating - $2 Per Skater Huff 'N Puff Sr Tyke Practice Atom Girls Practice Atom Rep vs Elma Logan Juvenile vs Ripley Port Albert vs Ripley Sun Dec 22, 2013 11:30am 1pm 2:30pm 3:30pm 6:15pm 7:30pm 8:30pm Old Devils vs Tiverton Int. Ladies Practice Public Skating - Sponsored by Lucknow Kinsmen PeeWee Girls vs South Bruce Midget Dev Practice Bad Apples Cliff's Shinny Tue Dec 24, 2013 10am Open Skating - $2 Per Skater 12pm Public Skating - Sponsored by Cliff's Plumbing & Heating 2pm 85's vs Broncos Thu Dec 19, 2013 10am 5pm 6pm 7pm 8:30pm 9:30pm Open Skating - $2 Per Skater Novice Rep Practice PeeWee Rep Practice Bantam Rep vs Mount Forest Midget Girls vs Tiverton Rec League Lagers vs Eagles Sat Dec 21, 2013 9am 10am Ilam 12pm fpm 2:15pm 3:15pm 4:45pm 6pm 8pm Bantam Rep Practice Jr Tyke vs Goderich Sr Tyke vs South Bruce Novice Dev Practice Atom Dev vs Goderich Novice Rep vs South Bruce PeeWee Dev vs Ripley Int Ladies Practice Legends vs Petrolia Lancer vs Ripley Wolves Mon Dec 23, 2013 10am fpm 5pm 6pm 7pm 8:30pm Open Skating - $2 Per Skater Public Skating - Sponsored by Thompson's Port Albert Novice Dev Practice Atom Rep Practice Bantam Dev vs Wingham Midget Dews Kincardine HURON TELECOMMUNICATIONS CO-OPERATIVE LTD. 519-395-3800 www.hurontel.on.ca Drug trial for Whitechurch family a sign of new hope CONTINUED FROM > PAGE 1 progression of the disease. Raiman said he has seen a significant improvement in their testing. One of the tests he said tests their endurance by climbing stairs. He said they are able to do that at an increased efficiency. Debbie said her boys have been able to be more like reg- ular teenagers since they have been on the drug. They are able to stay up late like many teenagers do and she said the added energy has given them the ability to be more atten- tive at school as well. Both of the boys attend FE Madill School in Wingham. Zane is in Grade 9 and Luke is in Grade 11. "Before they were on the drug the boys were doing a lot of napping during the day because they were exhausted. They would often fall asleep on the bus on the way home from school as well as after dinner a lot of the time. I've certainly noticed since they have been on the drug that they are much more ener- getic and can stay awake for the whole day," said Debbie. "Luke has done really well in school especially with the amount of time missed being in Toronto doing the drug trial. Zane has also been a lot of more attentive at school and his teachers have said and he is learning a lot better because he's not so exhausted when he is in class:' Debbie said the drug trial has given her and her family hope for the Luke and Zane's future. The treatment isn't a cure, but Debbie hopes it will give her sons time to live their lives as independent well - adjusted people. "When the boys were first diagnosed I was told it was a progressive degenerative dis- ease and that at some point the boys would pass away and wouldn't live long," said Debbie. "The treatment has given us more hope and it makes the quality of their lives better, which is impor- tant to me. I just want them to be as independent as possi- ble and it makes me so proud to see where they are in their lives right now." Debbie said one of the big reasons Luke and Zane went on the drug trials was to improve their condition, but to also provide help for the other people who have Morquio A Syndrome. It's another point of pride for their mother. She said the boys are very selfless people who never seem to get down due to their situation. "One of the reasons we a th Our Hip to t1._: hauks Warmast Our hearts are filled with gratitude as we wish you and yours a very Merry Christmas and a Happy New Year. We value your patronage and look forward to the opportunity to serve you again, soon. Staff and families of ... Lloyd Collins Construction \liKruzitr,Mamir Liwos started this drug trial wasn't just for the boys and I think that was one of Luke and Zane's goal started. They do want to live longer, but they also want to give all of the friends they have met with Morquio Syndrome to have access to the drug as well," said Debbie. "Right now Luke and Zane are on the drug and they have access to it, so get- ting approval for it is extremely important to us. Luke and Zane are very kind hearted and they want to help everyone they can through this drug trial and they make me so proud everyday because of things like that." Zane Braun of Whitechurch who suffers from Morquio A Syndrome a rare genetic disorder that will shorten his life is seen here being treated with the drug Vimizim. The drug will potentially decrease the amount of sugars in their bodies and hopefully will slow down the progression of the disease. LET IT SNOW LET IT SNOW LET IT SNOW rk k yea foryourpatronageover the past 5Oyears. Fron4 our fanii y to yours. We wish you a safe and Happy Holiday NIAC.HINE SHOP I.TDD.