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Wednesday, December 18, 2013
Christmas Edition
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TROY PATTERSON KINCARDINE NEWS
Lucknow Central's Winter Arts Celebration!
Lucknow Central Public School had a wide variety of performances during
its December Arts Celebration, featuring a variety of Christmas and festive
music, skits and performances by all grades on Dec. 11-12, 2013. Mrs.
Nelson's Grade 2 class performed 'Our Christmas Alphabet', with some
students dressed the part of the letters they were assigned.
NEWS
Drug trial for
Whitechurch
family a sign
of new hope
Garit Reid
Grey -Bruce This Week
The last 121 weeks for Luke (16)
and Zane (14) Braun of Whitechurch
have been positive in the eyes of
their doctors said their mother Deb-
bie Braun has also seen improve-
ment in their energy levels. The two
teenage brothers are going through
a clinical drug trial to help slow the
advancement of Morquio A Syn-
drome. It's a rare genetic disorder
that will shorten their lives.
Luke and Zane are missing an
enzyme that breaks down complex
sugars causing dwarfism, respiratory
problems and extreme exhaustion.
Approximately 3,000 people are liv-
ing with Morquio A Syndrome
around the world.
The boys are part of a few who are
testing the drug, Vimizim, in Can-
ada, which was recently sent to the
US Food and Drug Administration
(FDA) in the US for approval as well
as it being sent for approval to
Health Canada. Debbie said she has
seen a marked improvement in both
her sons' energy levels. She said they
are able to go through a whole day
without having to rest.
"All of the different results the doc-
tors have come up with for the last
121 weeks have been coming up
positive especially from their lung
function tests and with their endur-
ance levels. Everything is all positive
so they have decided to send all of
the paperwork off to get approval
from the FDA and Health Canada,"
said Braun. "This drug will slow the
progression of the syndrome down
and make their lives more
manageable."
Metabolic geneticist Dr. Julian
Raiman said the drug will decrease
the amount of sugars in their bodies
and will potentially slow down the
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